Records relating to permission granted by participants who consented to participate in a research registry. This includes permission granted by adult subjects for themselves, or in the case of a minor, by a parent or legal guardian, as well as records of assent by children. These consent forms are used to prove that subjects have given their consent to participate in the research registry along IRB guidelines and to be considered as eligible for future research studies.
Official Copy: Principal Investigator
Retention: 6 years after termination or expiration of instrument
Disposition Method: Shred or Delete
Note: If an individual is removed from the registry pool before the pool is terminated, begin counting the six year retention period at that time.